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Tuesday, January 10, 2012

National Institute of Health Day 2

Today was the big day of tests.  We arrived at the Clinic at 7 am and by 8 they had taken Ethan back for sedation.  This was the first time I have ever been allowed all the way back and stayed with him until he was asleep.  I can't decide if I like that or not.  Either way,  handing over your baby to doctors sucks.  No other way to put it ...

During his 5 hour sedation he had a spinal tap, skin biopsy, inner eye exam and MRI.  While he was having his procedure done, Chris and I went and they took our blood to use in the Genome study that they are doing. 

Ethan had a difficult time waking up from the anesthesia this time.  That was a first for us.




After he finally woke up we went back to our room.  After about an hour we noticed he was very pale, we found out that his iron was very low.  They decided he needed a 4 hour IV drip and some iron to help him recover quicker.


Around 4 this afternoon he started running a fever - 103.  He has had Advil and the fever has still not broken.  Although, his spirits are great tonight!  The doctors told us that some children do run a temp after sedation due to the type of drug that is used.  Propofol (yep that same stuff that Michael Jackson took).  They said if he still has it in 24 hours than we can start to think about infection...so praying that he is just having a "typical" reaction to the drug!

All in all it was a long exhausting day.  We did get to have "facetime" with the other kids which was awesome! I miss them very much.

Special thanks to Rompy tonight for taking such good care of our Sweet Ethan, he never left his side all day!

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