Not the news we wanted...

Yesterday Ethan had his 1 year checkup and he has only gained .5 ounces in 3 months and grown .5 inches. He is not able to chew and swallow food so we are still making his baby food and the doctor is concerned that he is not getting enough calories so we will be working very hard along with his Occupational Therapist to teach him these skills.

Today he went to the hospital for his VCUG and Renal Scan to find out how is kidneys were doing since the surgery in April. Unfortunately it looks like one kidney is worse than before and the other is the same. Not good news, he is now Grade V which means that his surgery in April was not successful and that he will probably need another surgery. We meet with the Nephrologist and Urologist on Tuesday and will know more soon.

I would love to say that I handled this set back well but I would be lying. I'm mad, I'm angry, I'm sad and I'm tired. I wanted to put my hands up in the air and shout out to God and ask him why??? I wanted to pull the car over and have a really good pity party. I wanted to make it all go away but I can't. I wanted to give up. But I won't because ....

these people need me and I need them...

Urologist Appointment

Today was Ethan's checkup with Dr. E, the Urologist who did Ethan's surgery. He was happy that Ethan has not had a UTI since the surgery.  They did a little ultrasound and boy was that fun, trying to hold him still!  It showed that he still has hydro on one side of the kidney which he probably always will it's just a matter of how much reflux he has.  We go into the hospital on Dec 10th for an outpatient procedure called a VCUG to see what stage his reflux is at now.  Before the surgery it was a Stage 5 on one side and 4 on the other. 

The last time I was in Dr. E's office, Ethan was 3 weeks post operative, had 2 bags attached to his body that collected his urine and a heart/apnea monitor attached to him.  Today all he had attached to him was a binky...isn't life great!  Praise be to God!