I'm a child of God, a daughter to wonderful parents, wife to an amazing husband, Mother to 4 little Hams and a friend to many. Our youngest son was born 6 weeks premature with multiple birth defects. He is Globally Developmentally Delayed, Intellectually Disabled and has a diagnosis of a Defect in Complex I of his Mitochondria. Follow us while we learn our new "typical". We are living and learning everyday and praising God every moment for our blessings!
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Sunday, November 15, 2009
The Pledge by an almost 3 year old...
Wednesday, November 11, 2009
Tuesday, November 10, 2009
Urologist Appointment
The last time I was in Dr. E's office, Ethan was 3 weeks post operative, had 2 bags attached to his body that collected his urine and a heart/apnea monitor attached to him. Today all he had attached to him was a binky...isn't life great! Praise be to God!
Ethan's Story - Hospitializations and Surgeries during his first year
His first overnight stay at the hospital was in February just two months after he was sent home from the NICU/PCN. In the middle of the night he started running a fever, grunting in pain and stopped eating. I knew instantly that he had a UTI. We went to the ER where they drew his urine and it was so cloudy, dark and filled with blood that I began to weep and knew that my poor guy was in a world of pain. We knew that at 6 months the doctors wanted to perform surgery to repair the obstruction and re-construct his urters but they quickly decided it would happen a whole lot sooner. He stayed in the hospital for 3 days and was sent home on a new prophalactic antibiotic and orders to visit the cardiologist so that they could approve his surgery early.
Saturday, November 7, 2009
THE CHOSEN ONES
THE CHOSEN ONES
I had a dream the other night. It came to me so clear. I stood before the throne of God, afraid to come too near. God said to me, "I hear your prayers. There are answers you can't find. I brought you here to talk to me and help to ease your mind. "I said,"Well, yes, God, I am upset...About my special one. This punishment is awfully harsh...Whatever have I done?" God looked at me and shook his head, He said, "My Dear, you've got it wrong. I sent this special child to you because you are so strong. I searched and searched to try and find someone with a love so rare. Parents so unselfish they could give him that special care. I try to save my special gifts,like those you're speaking of,for a special kind of parents I call the 'Chosen Ones. 'Of all the ones to choose from,I know I've got it done...Parents who deserve my best,an honor you have won." -Unknown
Friday, November 6, 2009
FIVE QUESTION FRIDAY!
It's Friday! I've got a semi laid back weekend planned. Jake's football team has a bye week before the first big playoff game next weekend so we get a Saturday all to ourselves. Whatever will we do? Oh, I know exactly what I'm gonna do....work on cleaning out the 3rd floor/attic. Ugh, it's a nightmare. Maybe I'll take pictures and blog about it. Ha! That will be a sight! I have a Tastefully Simple Party tonight at one of my friends houses and that is always a ton of fun! Sunday will be a church day and I'm sure some football game will be on that the boys will have to watch. Oh and I did get a 25% off of YOUR ENTIRE purchase at Gap so maybe I'll hit up the mall while they are watching football. Hmmm, the possibilities are endless...
So since it's Friday it's time for Mama M's 5 Question Friday.... here are the questions and MY answers. Link up and tell me what yours are!
1. What is your dream job?
I would love to own a coffee shop/book store. Wouldn't that be so great to just hang out all day and read and make coffee? OR a scrapbooking store, that would be fun also!
2. What song could you play over and over?
Right now I'm kinda diggin Gracie's Taylor Swift CD - that girl is just the cutest and I think the song that is getting played over and over in the van is "You belong to me" I also LOVE "Somewhere Over the Rainbow" that is a song that we play a lot for Ethan when he is napping and I just love IT!
3. Do you prefer to talk on the phone or text (or email)? Depends on who I'm talking to. I LOVE talking on the phone to my BBFF - we talk at least twice every day. I do like to email/text 'cause it's quick and I just don't have time to be talkin on the phone all day.
4. What is your must have beauty product? Burt's Bees chapstick - need I say more?
5. What is your favorite Michael Jackson song? Billie Jean - takes me back to my childhood. I rocked out the MJ purse and the pleather pants...can't you just picture it? Stop laughing....you had 'em to!
Have a great weekend!
Wednesday, November 4, 2009
Hot and Healthy!
My fellow Mama over at My Little Life is hosting an awesome "gig" called Hot and Healthy through the Holidays and I am so In!!! After having four babies I am yes, yes, here it goes....50 lbs over weight. OH MY GOSH! I keep saying I'll start tomorrow and than tomorow comes and I have a stressful day and reach for a piece of candy and since I had one piece I might as well have two and you can guess what happens next....
So here goes friends...I'm IN.....
Go on over to My Little Life and check it out.
Here is the first goal:
The first week's goal (starting today...) is: at least a half hour of cardio 5 days out of the week. If you do more..even better! You can walk, run, jump rope, exercise video's, gym, ride a bike etc...running after the kiddos, however, does not count.
I'll let you all know next Tuesday how I did!
